I finally got hold of the neurosurgeons rooms - it only took six phone calls. I was advised that I shouldn't worry as I will be contacted, but that an MRI appointment will take a couple of months to schedule. I felt like I had been punched in the stomach. I couldn't help it, I blurted out "but she's got hydrocephalus, a couple of months is too long". I was put on hold. I almost hung up I was feeling so emotional.
"Oh, her file is marked as urgent and I have just received it to book the appointment for you today." I still don't feel particularly reassured. We had our appointment a week ago and if it was urgent I would have thought that the file would have at least made it to the secretaries desk within the week we had our appointment.
Katriona has lost what little head control she had. I think her head feels heavy and is always hot too. We have to support her head like a newborn when we hold her as it falls back and she can't get it back up without assistance. I could be imagining all of this of course, but I am sure she is getting worse.
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